Missing out shouldn’t feel normal
About three-fourths of people with hereditary angioedema (HAE) reported that they make trade-offs in their lives due to the unpredictability of attacks.*
While everyone’s experience with HAE is different, you may recognize some similarities in what others have shared.
people reported that they frequently missed or avoided events because of their HAE.*
of people reported an HAE attack in the past year, but doctors estimated only 64%, highlighting a gap in awareness.*
of people reported they felt that they still hadn’t found the best preventative treatment for them.*
*Online survey conducted by The Harris Poll of 150 US adults diagnosed with HAE by a health care provider and 228 board-certified allergists and immunologists practicing in the US, sponsored by Ionis.


Test your disease control
If you’re unsure whether your HAE is under control, the Angioedema Control Test (AECT) can help. The AECT is a 4-question test that can help you and your doctor determine if you’re well controlled or poorly controlled.
Ready to talk to your doctor?
Whether you’re considering your first long-term preventative treatment for HAE or looking to evaluate other treatment options, this guide can help you prepare for your next doctor’s visit.