Shelf with coffee mugs and bags of coffee beans. Missing out due to HAE shouldn't feel normal.

Missing out shouldn’t feel normal

About three-fourths of people with hereditary angioedema (HAE) reported that they make trade-offs in their lives due to the unpredictability of attacks.*

While everyone’s experience with HAE is different, you may recognize some similarities in what others have shared.

ALMOST
9
OUT OF
10

people reported that they frequently missed or avoided events because of their HAE.*

93%

of people reported an HAE attack in the past year, but doctors estimated only 64%, highlighting a gap in awareness.*

ALMOST
TWO-THIRDS

of people reported they felt that they still hadn’t found the best preventative treatment for them.*

*Online survey conducted by The Harris Poll of 150 US adults diagnosed with HAE by a health care provider and 228 board-certified allergists and immunologists practicing in the US, sponsored by Ionis.

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Test your disease control

If you’re unsure whether your HAE is under control, the Angioedema Control Test (AECT) can help. The AECT is a 4-question test that can help you and your doctor determine if you’re well controlled or poorly controlled.

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Ready to talk to your doctor?

Whether you’re considering your first long-term preventative treatment for HAE or looking to evaluate other treatment options, this guide can help you prepare for your next doctor’s visit.